National Scientific Advisory Group

The National Scientific Advisory Group (NSAG) is an Education and Research Committee whose role is to recommend research initiatives, identify gaps in Red Nose Education and Grief and Loss policy and to ensure our education messages stem from evidence-based research. NSAG reviews and recommends research development, research initiatives and public and health professional educational campaigns, as well as providing advice to Red Nose on the projects that best fall within our research funding protocol. NSAG meets four times a year. For more information contact Red Nose on 1300 998 698.

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Prof Rosemary Horne

Chair

Professor Rosemary Horne is a National Health and Medical Research Council of Australia Senior Research Fellow and heads the Infant and Child Health theme within the Ritchie Centre, Monash Institute of Medical Research.

Her research interests focus on sleep in infants and children, and she has had a particular interest in the mechanisms underlying the risks for SIDS for over 30 years. Rosemary has published more than 100 research and review scientific articles.

She is Chair of the Physiology working group of the International Society for the Study and Prevention of Infant Deaths and the Paediatric Special Interest Group of the Australasian Sleep Association, a Director of the International Paediatric Sleep Association, a member of the Red Nose Australia National Scientific Advisory Group and is on the editorial boards of the Journal of Sleep Research, Sleep and Sleep Medicine.

Dr Adrienne Gordon

Deputy Chair

Neonatologist and Clinical Senior Lecturer, Royal Prince Alfred Hospital The University of Sydney

Adrienne is a Neonatal Staff Specialist in the RPA centre for newborn care and an NHMRC Early Career Research Fellow at the University of Sydney. She has a Masters of Public Health and a PhD on risk factors for stillbirth for which she received an NHMRC Public Health Scholarship. She is particularly interested in perinatal topics with a public health impact that have the potential to improve pregnancy and newborn outcomes.

Adrienne is on several State and National Committees that are directly responsible for policy and practice in the provision of perinatal care. She is Deputy Chair of the National Scientific Advisory Group of Red Nose, a member of the IMPACT network for improving health through perinatal clinical trials, represents NSW on the National Perinatal Mortality Report project and has close links with perinatal consumer groups such as Miracle babies and the Stillbirth Foundation Australia. She is an avid supporter of evidence-based policy and practice and is passionate about translating research into clinical care.

She led the Sydney Stillbirth Study which assessed modifiable risk factors for late pregnancy stillbirth across nine different hospitals. The results of this project have contributed to the recent establishment of a specialised bereavement support service (iSAIL – integrated support after infant loss) within Sydney Local Health District. Adrienne is also Project Lead for the Charles Perkins Centre’s BABY1000 Study. BABY1000 is a visionary project which will provide a major contribution to knowledge regarding early life predictors of health and disease and the interventions that will ultimately improve health for our future generations.

Professor Jeanine Young

Prof Jeanine Young

School of Nursing and Midwifery, University of the Sunshine Coast

Adjunct Professor, Centre for Health Practice Improvement, Griffith University

Visiting Senior Research Fellow, Children’s Health Queensland Hospital and Health Service

Professor Jeanine Young is a registered nurse, midwife, and neonatal nurse with over 25 years of experience in neonatal, paediatric and child health care. Jeanine has a special interest in how infant care practices impact infant mortality, and in particular breastfeeding, parent-infant bed-sharing and shared sleeping practices, and infant settling strategies, including infant wrapping.

Jeanine is a member of the Australian College of Midwives Scientific Review and Advisory Committee, Queensland Paediatric Quality Council, Queensland Child Death Review Committee. Jeanine chaired the Red Nose National Scientific Advisory Group from 2008-2015.

Jeanine’s research has a particular focus on developing evidence-based strategies and culturally appropriate educational resources to assist health professionals, including Indigenous Health Workers, in delivering Safe Sleeping messages to parents with young infants.

Jeanine is currently leading the first Australian safe infant sleep space trial in Aboriginal and Torres Strait Islander communities using the Change for our Children Pepi-pod Program.

Dr Susan Arbuckle

Dr Susan Arbuckle is a senior Staff Specialist at the Children’s Hospital at Westmead in Histopathology. She is on the NSW Maternal and Perinatal Committee and on the Perinatal Outcomes Working Party. She also sits on the State Birth Defects Committee and has been involved with PSANZ and with the Stillbirth Project. In the past she has been involved with college committees and organising the paediatric and perinatal component of various meetings.

She has been an author on a number of papers, the majority of which have been in paediatric and perinatal pathology. Her particular interest has been the aetiology of stillbirth and placentas.

Susan has set up and organised a Perinatal Service, which is now used by Western Sydney, Central & South West Sydney, Gosford, most private hospitals in Sydney and many of the country hospitals. The quality and care offered by this service is much appreciated by those using it. Careful examination is made of every perinatal case to find, if possible, the aetiology and possible cause of the perinatal death. Education of clinicians and providing answers and appropriate care of the babies for the parents and clinicians is a focus of the service.

Prof Roger Byard

Professor Roger Byard holds the George Richard Marks Chair of Pathology at the University of Adelaide and is a Senior Specialist Forensic Pathologist at Forensic Science SA in Adelaide, Australia. He has a specific interest in sudden infant and childhood death and coedited/authored the following books: Sudden Infant Death Syndrome – Problems, Progress and Possibilities (Arnold, 2001), Sudden Death in the Young (3rd ed) (Cambridge University Press, 2010) and Forensic Pathology of Infancy and Childhood (Springer, 2013).

Prof Gay Edgecombe

Gay Edgecombe formally held a number of positions (local, regional and state levels) in Community Health Nursing for the Public Health Department of Western Australia (1970-1990) and Professor of Community Child Health Nursing at RMIT University (1994-2010). In Victoria she worked closely with Victoria’s Maternal and Child Health Program and School Nursing Service. Her research was related to these services and included Fitting Fathers into Families (1999), development of the School Entrant Questionnaire (2001).

Overseas projects included AusAID program work in China and Indonesia and a short secondment to the WHO European Office in Denmark. More recent projects included being a member of the steering committee overseeing the development of the Royal Women’s Hospital Parenting Package (2014).

Prof Heather Jeffery

Professor Heather Jeffery MB BS, PhD, MPH, FRACP, MRCP(UK) is a Paediatrician/Neonatologist. She has been Professor of International Maternal and Child Health, Sydney School of Public Health at the University of Sydney and Clinical Academic Neonatologist at Royal Prince Alfred Hospital (RPAH), Sydney. Prior to this she was Head of Department of Neonatology at RPAH.

During the last 10 years she has focused on South East Asian countries working in Malaysia, Vietnam, the Balkans and more recently Mongolia and South Africa. Her research interests are focused in three areas.

i) A multidisciplinary nutritional research program underway in Sydney to develop methods to screen rapidly, easily, at low cost the most at risk, malnourished, term newborns and young children up to two years using near infrared technology (NIR project). Gates Foundation funding

ii) Prevention of neonatal infection and perinatal mortality and morbidity in four South East Asian (SEA) countries (SEA URCHIN project funded by NHMRC, a collaborative project with the Cochrane Centre, Monash University and four SEA countries)

iii) Evidence-based education (SCORPIO methodology) to translate best evidence into practice. This has been trialed in NSW and applied to capacity building in Macedonia, Vietnam and the SEA URCHIN project

Since her PhD many years ago on SIDS she has maintained a research and community interest in the prevention of SIDS and Sudden Unexpected Death in Infants. She currently is a member of the Child Death Review Committee, NSW, the Sudden Infant Death Advisory Committee NSW Health and the scientific committee of Red Nose.

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Assoc Prof Jane Freemantle

Associate Professor Jane Freemantle holds a Master of Public Health from the University of Adelaide and a PhD (Paediatrics) from the University of Western Australia. Professor Freemantle’s main career focus is as a paediatric epidemiologist working with total population linked data describing Indigenous infants, children and young people and communities, nationally and internationally.

She argues that unless we have complete and accurate data describing Indigenous populations, we will be unable to identify whether indeed we have successfully ‘closed the gap’ on Indigenous disadvantage. To this end, her particular focus is on ensuring that data that informs policies, strategies and initiatives aimed at reducing the disparities and improving outcomes of the social determinants of health and wellbeing experienced by Indigenous populations are complete and accurate. She has recently completed a program of research funded by the Australian Research Council the Lowitja Institute, Department of Prime Minister and Cabinet, the Aboriginal Health Branch of the Department of Health Victoria and the Ross Institute. The research has developed a more accurate and complete total population mortality profile of Victoria’s Aboriginal (and non-Aboriginal) children born between 1998-2008, using population data linkage and an innovative method and research process. This research has enabled for the first time a more accurate baseline from which to measure the success of state and national initiatives aimed at reducing the current disparities in mortality and maternal and infant outcomes experienced by Indigenous populations.

Professor Freemantle holds a position as Principal Research Fellow (hon) within the Melbourne School of Population and Global Health at the University of Melbourne, position as Principal research fellow within the Department of Rural health (Shepparton) has been an Australian Research Council Australian Research Fellow. Jane also holds an Associate Professor position at the Department of Paediatrics and Child Health at the University Of Western Australia, an honorary Senior Research Fellow at the Victorian Institute of Forensic Medicine, Monash University, Victoria, and is an Honorary Research Fellow, Telethon Institute for Child Health Research, University of Western Australia. She is a Chief Investigator on an Australian Research Council Linkage Grant (Monash University) and an Associate investigator on an NHMRC Program Grant.

Dr Jhodie Duncan

Doctor Jhodie Duncan is currently an ARC Future Fellow at the Florey Institute of Neuroscience and Mental Health, Melbourne.

Beginning in 2005, Dr. Duncan spent four years in the laboratory of Professor Hannah Kinney at Children’s Hospital Boston and Harvard Medical School, MA, USA on CJ Martin and First Candle Fellowships. During this time Dr. Duncan explored the underlying neurotransmitter abnormalities that exist in infants dying of SIDS and how these may contribute to sudden death. Her findings, which were published in JAMA (2010), revealed that infants dying of SIDS are unable to produce adequate levels of the neurotransmitter serotonin in regions of the brainstem involved in life sustaining processes, thus increasing the risk for sudden death.

Since returning to Australia she has a continued interest in SIDS research acting as the Australian Scientific Coordinator for collaborative research projects within Australia and the US.

Dr Catherine Chamberlain

Catherine Chamberlain is a Senior Research and NHMRC Early Career Fellow at the Baker IDI (Melbourne), and her fellowship aims to develop strategies to reduce cardio-metabolic risk among Aboriginal and Torres Strait Islander mothers.

A descendant of the Trawlwoolway people (Tasmania), Catherine has over 25 years’ experience in maternal health, and has worked in remote, rural and urban settings across health service, government and university sectors. Her research interests include applied mixed method research and evaluation, including systematic reviews of evidence.

Assoc Prof Craig Pennell

Associate Professor Craig Pennell graduated in medicine with honours in 1993 from Adelaide University. After three years in the Royal Australian Army, he pursued training in Obstetrics and Gynaecology in Sydney. This was followed by three years of subspecialty training in Maternal-Fetal Medicine in Perth and 15 months of subspecialty training in Toronto, Canada. Whilst completing his specialty and subspecialty training, he completed a PhD in Fetal Physiology evaluating the role of lactate measurement in the prediction of fetal hypoxic-ischaemic brain injury during labour. His convocation for Doctor of Philosophy (with Distinction) was in 2004. In October 2003 Dr Pennell was awarded the Athelstan and Amy Saw Research Fellowship from the University of Western Australia to undertake postdoctoral research in molecular genetics at the Samuel Lunenfeld Research Institute in Toronto.

He returned to Perth in April 2005 and completed the examination process for certification as a subspecialist in Maternal Fetal Medicine in October 2006. When Dr Pennell returned to Australia he established the Perinatal Genomic Research Initiative within the School of Women’s and Infants’ Health (SWIH) at The University of Western Australia.

As the Associate Professor in Maternal Fetal Medicine at (The University of Western Australia at King Edward Memorial Hospital in Perth) his current position includes clinical maternal fetal medicine, undergraduate and postgraduate teaching and research with collaborators in Perth, Toronto, Alberta, and three multinational genetics consortiums: 1) the Preterm Birth Genome Project (PGP) led by the World Health Organisation in Geneva; 2) the Early Growth Genetics (EGG) consortium; and 3) the Early Genetics and Lifecourse Epidemiology (EAGLE) Consortium). In 2008, he received the Faculty of Medicine, Dentistry and Health Sciences award for Undergraduate teaching to small groups.

Associate Professor Pennell currently has 80 publications, two book chapters and five PhD students.

Dr Bronwyn Gould

Dr Bronwyn Gould

Dr Bronwyn Gould has post graduate qualifications in both paediatrics and psychological medicine.

Dr Gould has experience spanning over 35 years in general practice specialising in work with children, parents and young people. In addition to her regular practice, she established and provided an on site medical service for homeless women and women with children at Lou’s Place, Darlinghurst for 12 years from 2000.

She has been involved with training in NSW Department of Community Services (now FACS). Initially this was as a face to face trainer (2000 – 2004) and subsequently through developing and delivering video presentations for the Case Worker Child protection Dynamics course about inflicted injuries and about brain development.

In her capacity as a member of the NSW Child Death Review Team she works as a review officer at the NSW Ombudsman’s Office. Previously she was a member of the Commonwealth Ministerial Advisory group, Australian Council for Children and Parenting, serving as chairperson for two years. She has been involved in reviewing SUDI deaths since 2004.

She is a member of the Scientific Advisory Board for the Australian Parenting Website (www.RaisingChildren.net.au) and is a member of the external advisory group for the International Research Centre for Communication in Healthcare (IRCCH).

She has been involved in a range of publications in peer reviewed journals and was a member of the steering committee for WHO burden of Disease (Child Sexual Assault Study)

Bronwyn was the recipient of the 2014 University of NSW Alumni Award for Medicine and Health. In 1998 she was awarded the Member of the order of Australia (AM) for service to youth in NSW through Guides Australia and the National Association for Prevention of Child Abuse and Neglect (NAPCAN).She was a participant in the Sydney Leadership programme in 1999.

Bronwyn is actively involved working with children and young women in a voluntary capacity through Guides Australia. She has been a leader with the local Junior Guides since 1989, and has worked at State and National level in the organisation.

Dr Bronwyn Gould is a Fellow of the Australian College of Psychological Medicine, a member of the Chapter of Community and Child Health (Royal Australian College of Physicians) and a member of the International Society for Prevention of Child Abuse and Neglect (ISPCAN).